Achondroplasia Facts & Resources
“It’s important to be given the proper information so you can make the right decisions for your child.
– Caregiver of a child with achondroplasia
Latest Resources
About Achondroplasia Factsheet
Learn more about the causes, characteristics, and effects of achondroplasia with this useful factsheet.
‘Rising Love’ Children’s Book
We all have different traits that make us unique—where we are from, the colour of our eyes, which hobbies we enjoy—the list goes on. Sometimes we can be afraid to share what makes us special, but Rising Love is a book that teaches us to have confidence in our own unique ingredients.
Bone Growth Animation
Discover how bones grow, and how signals within the body slow this process in people with achondroplasia.
Free To Be Me
Free To Be Me features a range of individuals from across Europe and poses the question, ‘what makes you, you?’
Watch Riccardo, Anna, Sandy and Claudia discuss their experiences and how their personal journeys and individual choices have shaped their identities, while living with a rare condition or disability.
#FreeToBeMe
InTheKnow Frequently Asked Questions
Refer to the InTheKnow FAQ resource for any queries you have relating to life with achondroplasia, diagnosis and management.
InTheKnow Glossary
Read the InTheKnow Glossary to discover key terms or words relating to achondroplasia.
InTheKnow Frequently Asked Questions
Refer to the InTheKnow FAQ resource for any queries you have relating to life with achondroplasia, diagnosis and management.
Get ‘In The Know’ with Dr Melita Irving
Clinical Geneticist, Dr Melita Irving, answers key questions about achondroplasia.
InTheKnow Frequently Asked Questions
Refer to the InTheKnow FAQ resource for any queries you have relating to life with achondroplasia, diagnosis and management.
InTheKnow Glossary
Read the InTheKnow Glossary to discover key terms or words relating to achondroplasia.